Danish Real World Data sources - National Registries
28 Oct 2022

Denmark provides several national registries and disease / intervention registries. One of the unique benefits that Denmark provides is the speed of access. In best case scenario, data can be provided in 2 months. One of the drawbacks, is that the research must be carried out in Denmark.

Here are similar RWD overviews for:

If you are interest to learn more about the potential utility of registries, don’t miss this upcoming webinar:

We recommend this article that provides a good overview of the Danish real-world data: 

Schmidt, Morten, Sigrun Alba Johannesdottir Schmidt, Kasper Adelborg, Jens Sundbøll, Kristina Laugesen, Vera Ehrenstein, and Henrik Toft Sørensen. “The Danish Health Care System and Epidemiological Research: From Health Care Contacts to Database Records.” Clinical Epidemiology 11 (July 12, 2019): 563–91. https://doi.org/10.2147/CLEP.S179083.

Selection of national registries in Denmark and associated publications: 

Registry

Publication

Starting year

Cancer registry

Gjerstorff, Marianne Lundkjær. “The Danish Cancer Registry.” Scandinavian Journal of Public Health 39, no. 7 Suppl (July 2011): 42–45. https://doi.org/10.1177/1403494810393562.

1942

Cause of death registry

Helweg-Larsen, Karin. “The Danish Register of Causes of Death.” Scandinavian Journal of Public Health 39, no. 7 Suppl (July 2011): 26–29. https://doi.org/10.1177/1403494811399958.

1943

Conscription registry

Christensen, Gunhild Tidemann, Sissel Skogstad, Lars Ravnborg Nissen, and Merete Osler. “Data Resource Profile: Danish Conscription Registry Data (DCRD).” International Journal of Epidemiology, April 11, 2018. https://doi.org/10.1093/ije/dyy048.

1949

Civil registration

Schmidt, Morten, Lars Pedersen, and Henrik Toft Sørensen. “The Danish Civil Registration System as a Tool in Epidemiology.” European Journal of Epidemiology 29, no. 8 (August 2014): 541–49. https://doi.org/10.1007/s10654-014-9930-3.

1968

Income registry

Baadsgaard, Mikkel, and Jarl Quitzau. “Danish Registers on Personal Income and Transfer Payments.” Scandinavian Journal of Public Health 39, no. 7 Suppl (July 2011): 103–5. https://doi.org/10.1177/1403494811405098.

1970

Birth registry

Bliddal, Mette, Anne Broe, Anton Pottegård, Jørn Olsen, and Jens Langhoff-Roos. “The Danish Medical Birth Register.” European Journal of Epidemiology 33, no. 1 (January 2018): 27–36. https://doi.org/10.1007/s10654-018-0356-1.

1973

Patient registry

Schmidt, Morten, Sigrun Alba Johannesdottir Schmidt, Jakob Lynge Sandegaard, Vera Ehrenstein, Lars Pedersen, and Henrik Toft Sørensen. “The Danish National Patient Registry: A Review of Content, Data Quality, and Research Potential.” Clinical Epidemiology 7 (November 17, 2015): 449–90. https://doi.org/10.2147/CLEP.S91125.

1977

Socioeconomic data

Timmermans, Bram. “The Danish Integrated Database for Labor Market Research: Towards Demystification for the English Speaking Audience,”

1980

Prescription registry

Pottegård, Anton, Sigrun Alba Johannesdottir Schmidt, Helle Wallach-Kildemoes, Henrik Toft Sørensen, Jesper Hallas, and Morten Schmidt. “Data Resource Profile: The Danish National Prescription Registry.” International Journal of Epidemiology 46, no. 3 (01 2017): 798–798f. https://doi.org/10.1093/ije/dyw213.

1995

 

 

Tags: